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[IOPS-3748] Consent for UGR
Updated existing Consents to match new guidance, added StructureDefinition for validation
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16 files changed

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‎Consent/Consent-DataAccess-Example.json‎

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{
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"resourceType": "Consent",
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"id": "Consent-DataAccess-Example",
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"status": "active",
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"scope": {
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"coding": [
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{
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"system": "http://terminology.hl7.org/CodeSystem/consentscope",
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"code": "patient-privacy",
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"display": "Privacy Consent"
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}
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]
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},
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"category": [
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{
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"coding": [
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{
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"system": "http://terminology.hl7.org/CodeSystem/v3-ActCode",
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"code": "INFA",
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"display": "information access"
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}
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]
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}
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],
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"patient": {
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"reference": "Patient/Patient-AnitaLamberts-Example",
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"identifier": {
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"system": "https://fhir.nhs.uk/Id/nhs-number",
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"value": "8449303649"
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}
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},
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"dateTime": "2026-05-07T09:08:30Z",
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"performer": [
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{
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"reference": "Patient/Patient-AnitaLamberts-Example",
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"identifier": {
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"system": "https://fhir.nhs.uk/Id/nhs-number",
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"value": "8449303649"
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}
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}
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],
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"organization": [
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{
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"identifier": {
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"system": "https://fhir.hl7.org.uk/Id/ode-organization-code",
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"value": "X26"
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}
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}
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],
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"sourceReference": {
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"reference": "QuestionnaireResponse/QuestionnaireResponse-ConsentQuestionnaire-Example"
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},
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"policy": [
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{
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"uri": "https://www.england.nhs.uk/wp-content/uploads/2018/05/nhs-england-privacy-notice-v1.77.pdf"
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}
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],
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"provision": {
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"type": "deny",
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"provision": [
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{
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"type": "permit",
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"actor": [
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{
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"role": {
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"coding": [
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{
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"code": "AUCG",
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"system": "http://terminology.hl7.org/CodeSystem/v3-ParticipationFunction",
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"display": "caregiver information receiver"
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}
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]
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},
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"reference": {
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"identifier": {
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"system": "https://fhir.nhs.uk/Id/nhs-number",
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"value": "9999999999"
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}
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}
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}
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],
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"purpose": [
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{
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"code": "TREAT",
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"system": "http://terminology.hl7.org/CodeSystem/v3-ActReason"
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}
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],
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"data": [
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{
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"meaning": "instance",
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"reference": {
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"reference": "Condition/Condition-MonogenicHearingLoss-Example"
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}
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}
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]
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},
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{
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"type": "permit",
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"actor": [
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{
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"role": {
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"coding": [
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{
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"code": "IRCP",
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"system": "http://terminology.hl7.org/CodeSystem/v3-ParticipationType"
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}
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]
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},
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"reference": {
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"reference": "Group/Group-GenomicResearchers-Example"
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}
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}
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],
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"purpose": [
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{
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"code": "HRESCH",
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"system": "http://terminology.hl7.org/CodeSystem/v3-ActReason"
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}
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],
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"data": [
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{
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"meaning": "related",
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"reference": {
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"reference": "DiagnosticReport/DiagnosticReport-AnitaLamberts-Example"
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}
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}
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]
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},
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{
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"type": "permit",
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"actor": [
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{
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"role": {
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"coding": [
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{
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"code": "PROV",
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"system": "http://terminology.hl7.org/CodeSystem/v3-RoleClass"
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}
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]
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},
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"reference": {
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"identifier": {
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"system": "https://fhir.nhs.uk/Id/sds-user-id",
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"value": "123456789012"
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}
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}
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}
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],
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"purpose": [
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{
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"code": "TREAT",
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"system": "http://terminology.hl7.org/CodeSystem/v3-ActReason"
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}
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],
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"class": [
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{
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"code": "DiagnosticReport",
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"system": "http://hl7.org/fhir/resource-types"
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}
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]
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}
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]
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}
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}

‎Consent/Consent-DataSharing-Example.json‎

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{
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"resourceType": "Consent",
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"id": "Consent-DataSharing-Example",
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"status": "proposed",
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"scope": {
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"coding": [
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{
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"system": "http://terminology.hl7.org/CodeSystem/consentscope",
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"code": "patient-privacy",
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"display": "Privacy Consent"
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}
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]
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},
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"category": [
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{
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"coding": [
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{
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"system": "http://terminology.hl7.org/CodeSystem/v3-ActCode",
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"code": "IDSCL",
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"display": "information disclosure"
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}
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]
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}
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],
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"patient": {
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"reference": "Patient/Patient-AnitaLamberts-Example",
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"identifier": {
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"system": "https://fhir.nhs.uk/Id/nhs-number",
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"value": "8449303649"
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}
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},
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"dateTime": "2026-05-07T09:08:30Z",
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"performer": [
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{
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"reference": "Patient/Patient-AnitaLamberts-Example",
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"identifier": {
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"system": "https://fhir.nhs.uk/Id/nhs-number",
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"value": "8449303649"
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}
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}
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],
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"organization": [
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{
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"identifier": {
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"system": "https://fhir.hl7.org.uk/Id/ods-organization-code",
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"value": "X26"
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}
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}
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],
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"sourceReference": {
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"reference": "QuestionnaireResponse/QuestionnaireResponse-ConsentQuestionnaire-Example"
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},
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"policy": [
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{
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"uri": "https://www.england.nhs.uk/wp-content/uploads/2018/05/nhs-england-privacy-notice-v1.77.pdf"
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}
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],
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"provision": {
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"type": "deny",
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"provision": [
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{
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"type": "permit",
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"actor": [
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{
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"role": {
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"coding": [
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{
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"code": "PAT",
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"system": "http://terminology.hl7.org/CodeSystem/v3-RoleClass"
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}
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]
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},
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"reference": {
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"reference": "RelatedPerson/RelatedPerson-AnitaLambertsDeceasedPatient-Example",
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"identifier": {
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"system": "https://fhir.nhs.uk/Id/nhs-number",
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"value": "8449303650"
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}
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}
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}
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],
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"purpose": [
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{
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"code": "FAMRQT",
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"system": "http://terminology.hl7.org/CodeSystem/v3-ActReason"
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}
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]
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}
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]
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}
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}

‎Consent/Consent-RoD-PheobeSmitham-Example.json‎

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"resourceType": "Consent",
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"id": "Consent-RoD-PheobeSmitham-Example",
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"status": "active",
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"scope": {
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"coding": [
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{
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"system": "http://terminology.hl7.org/CodeSystem/consentscope",
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"code": "research",
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"display": "Research"
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}
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]
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},
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"category": [
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{
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"coding": [
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{
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"system": "http://terminology.hl7.org/CodeSystem/consentcategorycodes",
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"code": "research",
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"display": "Research Information Access"
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}
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]
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}
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],
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"scope": {
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"coding": [
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{
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"system": "http://terminology.hl7.org/CodeSystem/consentscope",
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"code": "patient-privacy",
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"display": "Privacy Consent"
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}
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]
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},
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"category": [
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{
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"coding": [
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{
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"system": "http://terminology.hl7.org/CodeSystem/v3-ActCode",
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"code": "RESEARCH",
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"display": "research information access"
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}
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]
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}
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],
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"patient":{
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"reference":"Patient/Patient-PheobeSmitham-Example",
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"reference": "Patient/Patient-PheobeSmitham-Example",
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"identifier": {
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"system": "https://fhir.nhs.uk/Id/nhs-number",
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"value": "9449307539"

‎Consent/Consent-RoD-PheobeSmithamAttachmentData-Example.json‎

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"resourceType": "Consent",
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"id": "Consent-RoD-PheobeSmithamAttachmentData-Example",
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"status": "active",
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"scope": {
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"coding": [
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{
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"system": "http://terminology.hl7.org/CodeSystem/consentscope",
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"code": "research",
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"display": "Research"
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}
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]
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},
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"category": [
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{
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"coding": [
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{
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"system": "http://terminology.hl7.org/CodeSystem/consentcategorycodes",
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"code": "research",
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"display": "Research Information Access"
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}
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]
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}
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],
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"scope": {
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"coding": [
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{
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"system": "http://terminology.hl7.org/CodeSystem/consentscope",
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"code": "patient-privacy",
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"display": "Privacy Consent"
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}
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]
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},
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"category": [
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{
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"coding": [
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{
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"system": "http://terminology.hl7.org/CodeSystem/v3-ActCode",
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"code": "RESEARCH",
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"display": "research information access"
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}
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]
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}
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],
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"patient":{
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"reference":"Patient/Patient-PheobeSmitham-Example",
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"reference": "Patient/Patient-PheobeSmitham-Example",
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"identifier": {
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"system": "https://fhir.nhs.uk/Id/nhs-number",
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"value": "9449307539"

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